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Alert! Call To Action on IDEA
Fairness Act (H.R. 4188) Tuesday May 6 Your Game Plan l Why IDEA Fairness Act Matters l Phone Tips l Learn More Kids rely on their parents, family members, friends, child advocates, to speak on their behalf.
In this Alert, we asking you to step up to the plate on Tuesday, May 6 by calling your Congressional Representatives
(202-224-3121) and asking that they co-sponsor H.R. 4188, the IDEA Fairness Restoration Act (H.R. 4188).
The IDEA Fairness Restoration
Act allows parents who prevail in due process or litigation under IDEA to be reimbursed for their expert witness fees —
an expense few parents can afford. This bipartisan
bill will help to level the playing field for parents of children with disabilities.
Please forward this Alert to friends, family members, and co-workers.
Sign up free today! l Read previous issues
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| | Call-in Day: Tuesday, May 6, 2008 | Our goal is to organize and unite parents, child advocates, friends, and family members
in every state and territory and have them send a clear, strong message to Members of Congress on Tuesday, May 6.
Mom and dad: Make separate calls. Ask your child's grandparents, aunts, uncles, and cousins to call too.
Groups: Do you belong to a parent group? Church group? Community service group? Ask the members
of your group to call your Representative on Tuesday, May 6.
Co-workers: Yes.
Ask your co-workers to call your Representative on Tuesday, May 6. Make it easy for them - give them your
Representative's phone numbers.
Wouldn't it be great if we act together as a group with a common interest?
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| Your Game Plan: Call or Meet with Your Representative’s Office
| 1. Find Your Representative. Go to http://www.house.gov and put your zip code into the box in the upper left corner. You can also use http://www.congress.org to find this information. 2. Meet. The most
powerful way to communicate is face-to face. If you can, schedule an appointment with a staff member for your Representative
in their local district office this week so you can explain in person why he/she should cosponsor H.R. 4188.
3. Call. Every parent and child advocate
who reads this Alert needs to call their Representative on Tuesday, May 6 and ask the Representative to co-sponsor H.R.
4188. This will only take a few minutes of your time. By working together, we will will have a tremendous impact. Call the main switchboard at 202-224-3121 and ask for your Representative’s
Office. Tell the staffer who answers the phone that you are a constituent and your role (i.e., a parent, a child
advocate, a grandparent, a family friend). Ask your Representative to co-sponsor H.R. 4188, the IDEA Fairness Restoration
Act.
Your message is simple: "Please
cosponsor H.R. 4188, the IDEA Fairness Restoration Act. Parents need your help to afford expert witnesses when they
have to go to due process. Please provide parents and kids with a fair, balanced playing field."
Ask your friends, family members, neighbors, and co-workers to contact their Representatives on Tuesday, May 6 with
a similar message: "Please co-sponsor
H.R. 4188, the IDEA Fairness Restoration Act. It is expensive for parents of children with disabilities to pay for medical
and technical experts to support their child's case. Most parents cannot afford this expense on their own."
Tip:
Ask for the Education Aide. If this person is not available, give your message to the person who answers the phone. if you
get a voicemail, leave a message explaining who you are and that you want your Representative to co-sponsor the IDEA Fairness
Restoration Act - H.R. 4188. Call back again later. More Phone tips
If you can't make a long-distance call, go to your Representative's web site at http://www.house.gov. to look up your Representative and get their local phone number. You can also find their local phone numbers
at http://www.congress.org
Please call on May 6. Do not send an email. We need Congress to hear our voices.
When many people call, Congress listens. 3. If you called earlier, call again. Your Representative needs to hear from all constituents.
Repeating your message is fine. If you called your Representative a few weeks ago, please call again on May 6. If you cannot
call on May 6, call within a day or two.
For more information about this Alert, please contact Robert Berlow
or Jessica Butler of COPAA at protectidea@copaa.org | back to the top |
| Why the IDEA Fairness Restoration Act (H.R. 4188) is Important to Parents | The IDEA Fairness Restoration Act will override the Supreme Court's
decision in Arlington Central School District v. Murphy (2006) and allow parents who prevail to be reimbursed for their expert witness fees. H.R. 4188 will help to level the playing field.
H.R. 4188 is essential to protect the rights of 7 million children with disabilities and their parents.
Here are
a few reasons why the IDEA Fairness Restoration Act is so important: • When prevailing parents cannot recover expert costs, the
playing field is neither level nor fair, and children are denied a free appropriate public education and other fundamental
IDEA rights. • Hiring qualified medical and technical expert witnesses can cost many thousands of dollars.
Few parents can afford this high cost, putting due process out of reach for most parents, who struggle to afford what their
children with disabilities need. • School districts
use tax dollars to employ and pay for psychologists and other paid experts at IEP meetings and hearings. Parents have
fewer resources and yet must bear a greater financial burden. Approximately 36% of children with disabilities live in families
earning less than $25,000 a year; over 2/3 earn less than $50,000 a year. • Congress intended for parents to recover their expert witness fees in the Handicapped Children's
Protection Act of 1986. H.R. 4188 will restore Congress' original intent. • If parents cannot afford due process, the IEP process becomes even more one-sided and
unfair. School personnel control the IEP process and usually outnumber parents. The right to due process helps ensure
that school districts provide free appropriate public educations to children with disabilities. • Most parents turn to due process and litigation as a last resort. In 2003, the
GAO reported that there were 5 due process hearings per 10,000 special education students. When parents are forced to request
due process, they need expert witnesses to prevail.
Why the IDEA Fairness Restoration Act Matters A Pennsylvania public interest organization represented the mother of
8th grade student with dyslexia and written expression disorders. The child had struggled to read and write all his life.
The school district failed to provide a scientifically-based reading program so the child was failing. His single mother was forced to request a due process hearing to implement
the recommendations of an independent evaluator and obtain appropriate special education services for her child. This parent
had to borrow $1,400 to pay the independent evaluator to testify. She also had to pay for the expert's time while being cross-examined
by the school district for two days. She won her due process case. Because this case was decided before the Supreme Court’s decision in Murphy, the mother
was able to recover her expert fees. But - if she had requested a due process hearing after Murphy, she would
not be allowed to recover her expert witness fees. Without an expert, it would have been difficult to pursue the case if at
all. The IDEA Fairness Restoration Act will ensure that parents can recover their expert witness fees.
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| Phone Tips | Before you call your Representative's office on Tuesday, May 6, jot
down the key points you want to make. Tell the person you speak with that you are a constituent and a parent and/or advocate,
family member, friend. You are requesting that your Representative cosponsor H.R. 4188, the IDEA Fairness Restoration
Act.
Personal stories are important. If you can, explain how your child, or a child for whom you
advocate, could be helped by the IDEA Fairness Restoration Act. Explain to your member of Congress how hard it is for parents
of children with disabilities to afford expert fees, in addition to the expense of raising a child with a disability. Explain
that the due process system helps to ensure that parents are equal partners at the IEP table. Won't it be great
when the phones in Congress ring off the wall on Tuesday, May 6? Won't it be great when Congressional staffers tell their bosses, "We are getting so many
calls from parents and advocates asking us to cosponsor the IDEA Fairness Restoration Act - we need to pay attention to them!" When we take this step, and call our RepresentativeS, we can make the
IDEA Fairness Restoration Act a reality! | back to the top |
| Learn More About the IDEA Fairness Restoration Act | The IDEA Fairness Restoration Act is supported by Wrightslaw and over 100 disability organizations. Read the letters they sent to Congress on COPAA’s web page (http://www.copaa.org/news/organizations.html). To learn more about the IDEA Fairness Restoration
Act, visit the IDEA Fairness page at http://www.copaa.org/news/ask_congress.html on the website of the Council of Parent Attorneys & Advocates, Inc. (COPAA). Download a brochure with more information and examples from http://www.copaa.org/pdf/MurphyBrochure.pdf Information about the IDEA Fairness Restoration
Act in Spanish is here: (http://www.copaa.org/pdf/MSSpanish.pdf) Read the full text of the IDEA Fairness Restoration
Act, H.R. 4188. html l pdf l word Read Congressman Chris Van Hollen’s statement in introducing the IDEA Fairness Restoration Act (http://www.copaa.org/news/VHRemarks.html) For more information about this Alert,
please contact Robert Berlow or Jessica Butler of COPAA at protectidea@copaa.org | | back to the top |
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| Two Bills Make Progress in Congress | Take Action! | | We Need More Co-sponsors Now, Contact Your Senators and Representatives Today | | | | Two bills in Congress could significantly improve the future of
children and adults with Down syndrome in the United States. Please contact your Senators and Representatives to show your
support for the following bills: Prenatally Diagnosed Condition Awareness Act Rep. James Sensenbrenner
(R-WI), along with Reps. McMorris-Rodgers (R-WA) and Pete Sessions (R-TX) in the House, and Sens. Kennedy and Sam Brownback,
introduced the Prenatally Diagnosed Condition Awareness Act of 2007 (HR 3112/S 1810). The bill increases the amount of scientifically
sound information and support services to patients receiving a positive test diagnosis for Down syndrome or other prenatally
and postnatally diagnosed conditions. In addition, the bill would fund grants, contracts and cooperative agreements
to collect, synthesize, and disseminate current scientific information. Further, the bill would coordinate and provide access
to supportive services for patients including: • A Telephone Hotline • An Information Clearinghouse
• Peer-support Programs • Registries of families willing to adopt children affected by such conditions Contact
your Representatives and Senators today. Ask them to cosponsor HR 3112 and S 1810. Financial Security Accounts
for Individuals with Disabilities (FSAID) Rep. Ander Crenshaw (R-FL) introduced the Financial Security
Accounts for Individuals with Disabilities Act of 2007 (HR 2370) in the House and Sens. Bob Casey (D-PA) and Orrin Hatch (R-UT)
introduced the companion bill, Financial Security Accounts for Individuals with Disabilities Act of 2008 (S 2743), in the
Senate. Both of these bills would establish tax-exempt financial security accounts for individuals with intellectual disabilities
and not jeopardize benefits. Funds in the accounts will pay for important expenses such as: • Education • Medical care and dental care • Transportation • Moving • Assistive technology •
Housing and Transportation, after the age of 18 • Employment coaching and training The purpose of these
accounts is to establish a savings instrument for individuals with disabilities and their families to provide them with the
same flexibility, portability, and tax advantages that are available to all other Americans and their families. These accounts
are not intended to meet the long-term support needs of individuals with intellectual disabilities. The legislation is built
on the premise that persons with disabilities should be encouraged and supported in their efforts to save in order to create
an independent and meaningful life just as other Americans strive to do. Contact your Representatives and Senators
today. Ask them to cosponsor HR 2370 and S 2743. ACTION REQUESTED We are asking that
you contact your Senators and Representatives, via telephone or fax, to build support for the aforementioned bills related
to the Down syndrome community. The following is a sample letter that you can send: --------------------------------------------------------------------------------------------------------------------- Sample letter to your Senator or Representative [Insert Date] Dear Senator/Representative: I
am writing to you today to ask you to support two bills that will greatly aid the Down syndrome community and the families
that take responsibility for raising and supporting them. The Prenatally Diagnosed Condition Awareness Act (HR 3112/S 1810),
sponsored by Rep. Sensenbrenner and Sens. Kennedy and Brownback, helps modernize our public health infrastructure to ensure
pregnant woman receiving a positive diagnosis for Down syndrome and other genetic conditions receive timely access to evidence
based and up to date information and help facilitate better access to support services such as telephone hotlines, information
clearinghouses, peer-support programs and registries of families willing to adopt children with such conditions. I
am also writing today in support for the Financial Security Accounts for Individuals with Disabilities Act (HR 2370/S 2743)
sponsored by Rep. Crenshaw and Sens. Casey and Hatch. This bill would establish tax-exempt financial security accounts for
individuals with disabilities to pay for education, medical care and dental care, transportation, moving, assistive technology,
housing and transportation, after the age of 18, and employment coaching and training. These accounts allow for individuals
with intellectual disabilities to save for their futures just like everyone else. I have a [child/sibling/grandchild/friend]
with Down syndrome and am hopeful that these bills will help us better serve the Down syndrome community. [Insert a few sentences
about your family member or friend with Down syndrome.]
I appreciate your time and work on behalf of my [child/sibling/grandchild/friend].
I look forward to working with you in the future. Sincerely, |
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