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Please contact Speaker Rubio and your Representatives and ask them to fully support SB 2654!
Thank you,
Sharon



Autism Votes... It's time for lawmakers to listen.
 
06/18/09   Autism Votes... It's time for lawmakers to listen. 
Dear Autism Advocate,We are ramping up our grassroots efforts for the Autism Treatment Acceleration Act and need your undivided attention and support on this issue!You are receiving this email because you live in a state that has passed autism insurance reform at a state level. Congratulations on such an amazing acheivement! However, our work is not yet done because some of our community's neighbors in your state have coverage and some still do not. Through this piece of federal legislation, we have the opportunity to end autism insurance discrimination once and for all from coast to coast! We need your help to do that by calling the following people each day this week!Health insurance reform is the buzz phrase in Washington, DC right now. We need to generate thousands of calls to be sure that our children's needs for access to the treatments and therapies that will help them are being heard!
 
   
Here is How YOU Can Help:

1. NEITHER OF YOUR SENATORS HAVE SIGNED ONTO THE ATAA YET! CALL BOTH OF YOUR SENATORS AND ASK THEM TO CO-SPONSOR THE ATAA (Senate Bill 819)! To date neither one of the Senators from your state have signed onto this bill that will provide appropriate insurance coverage for all the children with autism in your state. We need you to call both Sen. Bill Nelson and Sen. Mel Martinez.
> Sen. Bill Nelson
Phone: (202) 224-5274
> Sen. Mel Martinez
Phone: (202) 224-3041
(Note: If you do not see the names and phone numbers for your Senators listed above, you can look them up HERE!)2. CALL YOUR MEMBER OF CONGRESS AND ASK THEM TO CO-SPONSOR THE ATAA (H.R. 2413)! Unfortunately, your House Representative has also not yet become a cosponsor of this bill. Rep. Mack IV needs to hear from you, your friends and your family. Call and ask Rep. Mack IVto become a cosponsor of the ATAA bill today!> Rep. Connie Mack IV
Phone: (202) 225-2536
(Note: If you do not see the names and phone numbers for your Representative listed above, you can look them up HERE!)

Not sure of what to say? It's easy! Just say this:

"Hi! My name is ____________. I am a constituent of yours and live in (City,State). I am calling to ask you to cosponsor the Autism Treatment Acceleration Act (give the appropriate bill number - Senate is S. 819 and House is H.R. 2413). We passed similar legislation to this in our state but not all of the children in our state are able to enjoy the coverage. We need your help to end autism insurance discrimination. Thank you so much."
> Once you have completed your call, you can send emails to your Congressional members HERE!3. FORWARD THIS TO 20 OTHER PEOPLE THAT CAN HELP YOU! If you have ever heard someone say, "I wish there was something we could do to help (insert your child's name here)!", now they can. It is a cost effective way to truly help your child and the other children with autism not only in your state, but nationwide.

For more information on the Autism Treatment Acceleration Act, please visit www.autismvotes.org/ataa.
Together we can get America's children appropriate coverage for the treatments and therapies they need!Happy dialing!Shelley Hendrix
Director of State Advocacy Relations
Autism Speaks
 
Take Action Today
> DONATE NOW to Autism Votes> Was this email forwarded to you from a friend?  Sign up to receive urgent email alerts from Autism VotesVisit our website at www.AutismVotes.org> CONNECT with Autism Votes:FacebookTwitterYouTubeChange.orgAutism Votes is an initiative of Autism Speaks

 


,

LEGISLATIVE ALERT

 

Lawmakers are still working behind the scenes to adjust the details of how the tiers will be implemented.    We are asking you to immediately contact the lawmakers listed below and ask them to do the following:
  • Modify the Tier language in Chapter 393, Florida Statutes, to include in Tier 2 those individuals who live at home with their families and have moderate to intensive levels of need.

We are asking for this action for the following reasons:

  • The current Tier design is arbitrary, not based on individual needs assessments, and designed without regard to approved medically necessary services.
  • Implementation will lead to inequitable and capricious results.
  • It permits approximately 71% of the population to increase their services by up to 6% while requiring 29% of the population, or over 8,000 others, to accept an average loss of $13,000 in services.
  • Over 2,000 of the individuals with reduced services and with moderate to intensive level of need live with their families.  Cuts to these services likely will have the unintended consequences of forcing these individuals into increased residential care at a greater cost.
  • Persons with moderate to intensive level of need living with their families are forced into Tier 3 which caps services at $35,000 per person.  Instead, include them in Tier 2, which caps services at $55,000.

It is imperative that you contact lawmakers as soon as possible before they finish their work.  Thank you for your support.  Please call the Council office if you have any questions

Senator Ken Pruitt - pruitt.ken.web@flsenate.gov  - (850) 487-5088
Representative Marco Rubio - marco.rubio@myfloridahouse.gov    - (850) 488-1450
Senator Durell Peaden - peaden.durell.web@flsenate.gov  - (850) 487-5000
Senator Lisa Carlton - carlton.lisa.web@flsenate.gov - (850) 487-5081
Senator Don Gaetz - gaetz.don.web@flsenate.gov - 850) 487-5009
Senator Burt Saunders-saunders.burt.web@flsenate.gov - (850) 487-5124
Senator Nan Rich - rich.nan.web@ flsenate.gov - (850) 487-5103
Senator Frederica Wilson -wilson.frederica.web@flsenate.gov - (850) 487-5116
Senator Ronda Storms - storms.ronda.web@flsentate.gov  - (850) 487-5072
Representative Aaron Bean - aaron.bean@myfloridahouse.gov - (850) 488-6920
Representative Ray Sansom - ray.sansom@myfloridahouse.gov - (850) 488-1170    
Representative Audrey Gibson - audrey.gibson@myfloridahouse.gov - (850) 488-7417
Representative Loranne Ausley - loranne.ausley@myfloridahouse.gov - (850) 488-0965
Representative Bill Galvano - bill.galvano@myfloridahouse.gov - (850) 488-4086 Representative Rene Garcia - rene.garcia@myfloridahouse.gov - (850) 487-2197
Representative Gayle Harrell - gayle.harrell@myfloridahouse.gov - (850) 488-8749
Representative D. Alan Hays - alan.hays@myfloridahouse.gov - (850) 488-0348
Representative Matt Hudson - matt.hudson@myfloridahouse.gov - (850) 488-1028
Representative Jimmy Patronis - jimmy.patronis@myfloridahouse.gov - (850) 488-9696
Representative Yolly Roberson - yolly.roberson@myfloridahouse.gov - (850) 488-7088
Representative Kelly Skidmore - kelly.skidmore@myfloridahouse.gov - (850) 488-1302
Representative Jim Waldman - jim.waldman@myfloridahouse.gov - (850) 488-3164

Implementation of the TIERS will cause grave harm to the disabled who live at home!   

There are only 2 weeks left in the session so you must act today!

PLEASE click on this link and take 3 minutes to send a critical message.

Alert! Call To Action on IDEA Fairness Act (H.R. 4188)
Tuesday May 6

Your Game Plan l Why IDEA Fairness Act Matters l Phone Tips l Learn More

woman speaking on phoneKids rely on their parents, family members, friends, child advocates, to speak on their behalf.

In this Alert, we asking you to step up to the plate on Tuesday, May 6 by calling your Congressional Representatives (202-224-3121) and asking that they co-sponsor H.R. 4188, the
IDEA Fairness Restoration Act (H.R. 4188).

The IDEA Fairness Restoration Act allows parents who prevail in due process or litigation under IDEA to be reimbursed for their expert witness fees — an expense few parents can afford.
This bipartisan bill will help to level the playing field for parents of children with disabilities.

Please forward this Alert to friends, family members, and co-workers.
http://ui.constantcontact.com/sa/fwtf.jsp?m=1101518003158&ea=pwright@harborhouselaw.com&a=1102067734177

Sign up free today!  l Read previous issues


Call-in Day: Tuesday, May 6, 2008

Our goal is to organize and unite parents, child advocates, friends, and family members in every state and territory and have them send a clear, strong message to Members of Congress on Tuesday, May 6.

parents on phoneMom and dad: Make separate calls. Ask your child's grandparents, aunts, uncles, and cousins to call too.

Groups: Do you belong to a parent group? Church group? Community service group? Ask the members of your group to call your Representative on Tuesday, May 6.

Co-workers: Yes. Ask your co-workers to call your Representative on Tuesday, May 6. Make it easy for them - give them your Representative's phone numbers.

Wouldn't it be great if we act together as a group with a common interest?

 

Your Game Plan: Call or Meet with Your Representative’s Office

1. Find Your Representative. Go to http://www.house.gov and put your zip code into the box in the upper left corner.  You can also use http://www.congress.org to find this information.Congress


2. Meet
. The most powerful way to communicate is face-to face. If you can, schedule an appointment with a staff member for your Representative in their local district office this week so you can explain in person why he/she should cosponsor H.R. 4188.

3. Call. Every parent and child advocate who reads this Alert needs to call their Representative on Tuesday, May 6 and ask the Representative to co-sponsor H.R. 4188. This will only take a few minutes of your time. By working together, we will will have a tremendous impact.

Call the main switchboard at 202-224-3121 and ask for your Representative’s Office. Tell the staffer who answers the phone that you are a constituent and your role (i.e., a parent, a child advocate, a grandparent, a family friend). Ask your Representative to co-sponsor H.R. 4188, the IDEA Fairness Restoration Act.

Your message is simple:

"Please cosponsor H.R. 4188, the IDEA Fairness Restoration Act.  Parents need your help to afford expert witnesses when they have to go to due process.  Please provide parents and kids with a fair, balanced playing field."

Ask your friends, family members, neighbors, and co-workers to contact their Representatives on Tuesday, May 6 with a similar message:

"Please co-sponsor H.R. 4188, the IDEA Fairness Restoration Act.  It is expensive for parents of children with disabilities to pay for medical and technical experts to support their child's case. Most parents cannot afford this expense on their own."

Tip: Ask for the Education Aide. If this person is not available, give your message to the person who answers the phone. if you get a voicemail, leave a message explaining who you are and that you want your Representative to co-sponsor the IDEA Fairness Restoration Act - H.R. 4188. Call back again later. More Phone tips

If you can't make a long-distance call, go to your Representative's web site at http://www.house.gov.  to look up your Representative and get their local phone number.   You can also find their local phone numbers at http://www.congress.org


Please call on May 6. Do not send an email. We need Congress to hear our voices. When many people call, Congress listens.

 3. If you called earlier, call again. Your Representative needs to hear from all constituents. Repeating your message is fine. If you called your Representative a few weeks ago, please call again on May 6. If you cannot call on May 6, call within a day or two.

For more information about this Alert, please contact Robert Berlow or Jessica Butler of COPAA at protectidea@copaa.org

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Why the IDEA Fairness Restoration Act (H.R. 4188) is Important to Parents

The IDEA Fairness Restoration Act will override the Supreme Court's decision in Arlington Central School District v. Murphy (2006) and allow parents who prevail to be reimbursed for their expert witness fees. H.R. 4188 will help to level the playing field. H.R. 4188 is essential to protect the rights of 7 million children with disabilities and their parents.

Here are a few reasons why the IDEA Fairness Restoration Act is so important:

• When prevailing parents cannot recover expert costs, the playing field is neither level nor fair, and children are denied a free appropriate public education and other fundamental IDEA rights.
 
• Hiring qualified medical and technical expert witnesses can cost many thousands of dollars.  Few parents can afford this high cost, putting due process out of reach for most parents, who struggle to afford what their children with disabilities need.

• School districts use tax dollars to employ and pay for psychologists and other paid experts at IEP meetings and hearings.  Parents have fewer resources and yet must bear a greater financial burden. Approximately 36% of children with disabilities live in families earning less than $25,000 a year; over 2/3 earn less than $50,000 a year.

• Congress intended for parents to recover their expert witness fees in the Handicapped Children's Protection Act of 1986.  H.R. 4188 will restore Congress' original intent.

• If parents cannot afford due process, the IEP process becomes even more one-sided and unfair.  School personnel control the IEP process and usually outnumber parents. The right to due process helps ensure that school districts provide free appropriate public educations to children with disabilities.

• Most parents turn to due process and litigation as a last resort. In 2003, the GAO reported that there were 5 due process hearings per 10,000 special education students. When parents are forced to request due process, they need expert witnesses to prevail.

Why the IDEA Fairness Restoration Act Matters

A Pennsylvania public interest organization represented the mother of 8th grade student with dyslexia and written expression disorders. The child had struggled to read and write all his life. The school district failed to provide a scientifically-based reading program so the child was failing.

His single mother was forced to request a due process hearing to implement the recommendations of an independent evaluator and obtain appropriate special education services for her child. This parent had to borrow $1,400 to pay the independent evaluator to testify. She also had to pay for the expert's time while being cross-examined by the school district for two days.  She won her due process case.

Because this case was decided before the Supreme Court’s decision in Murphy, the mother was able to recover her expert fees. But - if she had requested a due process hearing after Murphy, she would not be allowed to recover her expert witness fees. Without an expert, it would have been difficult to pursue the case if at all. The IDEA Fairness Restoration Act will ensure that parents can recover their expert witness fees.

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Phone Tips

Before you call your Representative's office on Tuesday, May 6, jot down the key points you want to make. Tell the person you speak with that you are a constituent and a parent and/or advocate, family member, friend. You are requesting that your Representative cosponsor H.R. 4188, the IDEA Fairness Restoration Act. 

Personal stories are important. If you can, explain how your child, or a child for whom you advocate, could be helped by the IDEA Fairness Restoration Act. Explain to your member of Congress how hard it is for parents of children with disabilities to afford expert fees, in addition to the expense of raising a child with a disability. Explain that the due process system helps to ensure that parents are equal partners at the IEP table.

Won't it be great when the phones in Congress ring off the wall on Tuesday, May 6?

Won't it be great when Congressional staffers tell their bosses, "We are getting so many calls from parents and advocates asking us to cosponsor the IDEA Fairness Restoration Act - we need to pay attention to them!"

When we take this step, and call our RepresentativeS, we can make the IDEA Fairness Restoration Act a reality!

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Learn More About the IDEA Fairness Restoration Act

The IDEA Fairness Restoration Act is supported by Wrightslaw and over 100 disability organizations.  Read the letters they sent to Congress on COPAA’s web page (http://www.copaa.org/news/organizations.html).

To learn more about the IDEA Fairness Restoration Act, visit the IDEA Fairness page at http://www.copaa.org/news/ask_congress.html on the website of the Council of Parent Attorneys & Advocates, Inc. (COPAA).

Download a brochure with more information and examples from http://www.copaa.org/pdf/MurphyBrochure.pdf

Information about the IDEA Fairness Restoration Act in Spanish is here: (http://www.copaa.org/pdf/MSSpanish.pdf)

Read the full text of the IDEA Fairness Restoration Act, H.R. 4188. html l pdf l word

Read Congressman Chris Van Hollen’s statement in introducing the IDEA Fairness Restoration Act (http://www.copaa.org/news/VHRemarks.html)

For more information about this Alert, please contact Robert Berlow or Jessica Butler of COPAA at protectidea@copaa.org

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Two Bills Make Progress in Congress
Take Action!
We Need More Co-sponsors Now, Contact Your Senators and Representatives Today
 
Two bills in Congress could significantly improve the future of children and adults with Down syndrome in the United States. Please contact your Senators and Representatives to show your support for the following bills:
Prenatally Diagnosed Condition Awareness Act
Rep. James Sensenbrenner (R-WI), along with Reps. McMorris-Rodgers (R-WA) and Pete Sessions (R-TX) in the House, and Sens. Kennedy and Sam Brownback, introduced the Prenatally Diagnosed Condition Awareness Act of 2007 (HR 3112/S 1810). The bill increases the amount of scientifically sound information and support services to patients receiving a positive test diagnosis for Down syndrome or other prenatally and postnatally diagnosed conditions.
In addition, the bill would fund grants, contracts and cooperative agreements to collect, synthesize, and disseminate current scientific information. Further, the bill would coordinate and provide access to supportive services for patients including:
• A Telephone Hotline
• An Information Clearinghouse
• Peer-support Programs
• Registries of families willing to adopt children affected by such conditions
Contact your Representatives and Senators today. Ask them to cosponsor HR 3112 and S 1810.
Financial Security Accounts for Individuals with Disabilities (FSAID)
Rep. Ander Crenshaw (R-FL) introduced the Financial Security Accounts for Individuals with Disabilities Act of 2007 (HR 2370) in the House and Sens. Bob Casey (D-PA) and Orrin Hatch (R-UT) introduced the companion bill, Financial Security Accounts for Individuals with Disabilities Act of 2008 (S 2743), in the Senate. Both of these bills would establish tax-exempt financial security accounts for individuals with intellectual disabilities and not jeopardize benefits. Funds in the accounts will pay for important expenses such as:
• Education
• Medical care and dental care
• Transportation
• Moving
• Assistive technology
• Housing and Transportation, after the age of 18
• Employment coaching and training
The purpose of these accounts is to establish a savings instrument for individuals with disabilities and their families to provide them with the same flexibility, portability, and tax advantages that are available to all other Americans and their families. These accounts are not intended to meet the long-term support needs of individuals with intellectual disabilities. The legislation is built on the premise that persons with disabilities should be encouraged and supported in their efforts to save in order to create an independent and meaningful life just as other Americans strive to do.
Contact your Representatives and Senators today. Ask them to cosponsor HR 2370 and S 2743.
ACTION REQUESTED
We are asking that you contact your Senators and Representatives, via telephone or fax, to build support for the aforementioned bills related to the Down syndrome community. The following is a sample letter that you can send:
---------------------------------------------------------------------------------------------------------------------
Sample letter to your Senator or Representative
[Insert Date]
Dear Senator/Representative:
I am writing to you today to ask you to support two bills that will greatly aid the Down syndrome community and the families that take responsibility for raising and supporting them. The Prenatally Diagnosed Condition Awareness Act (HR 3112/S 1810), sponsored by Rep. Sensenbrenner and Sens. Kennedy and Brownback, helps modernize our public health infrastructure to ensure pregnant woman receiving a positive diagnosis for Down syndrome and other genetic conditions receive timely access to evidence based and up to date information and help facilitate better access to support services such as telephone hotlines, information clearinghouses, peer-support programs and registries of families willing to adopt children with such conditions.
I am also writing today in support for the Financial Security Accounts for Individuals with Disabilities Act (HR 2370/S 2743) sponsored by Rep. Crenshaw and Sens. Casey and Hatch. This bill would establish tax-exempt financial security accounts for individuals with disabilities to pay for education, medical care and dental care, transportation, moving, assistive technology, housing and transportation, after the age of 18, and employment coaching and training. These accounts allow for individuals with intellectual disabilities to save for their futures just like everyone else.
I have a [child/sibling/grandchild/friend] with Down syndrome and am hopeful that these bills will help us better serve the Down syndrome community. [Insert a few sentences about your family member or friend with Down syndrome.]

I appreciate your time and work on behalf of my [child/sibling/grandchild/friend]. I look forward to working with you in the future.
Sincerely,

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